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Is EDNOS a Critical Diagnosis?

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So you’ve got the big three sisters: anorexia, bulimia and binge eating. Then also exists the cousin of the big three, EDNOS.

Inherent in the first two at least is a perfectionism trait - most anorexics and bulimics can be extremely good at what they do, both on and off the ED court. In fact all three major disorders are accompanied by a sense of failure. It’s especially well documented conjunction with BED - guilt during a binge period is one of the main symptoms; the binge cycle of bulimia is also full of guilt for many sufferers - for over eating to the point of feeling the need to purge. Anorexics, well, sometimes there’s guilt for the pain that the disorder has brought to friends and family - this is especially prevalent during relapse and recovery.

So, why is it that this cousin, this EDNOS, is by definition akin to failing at being truly a person with an eating disorder?

Doesn’t that set up the people diagnosed with it to further spiral downwards? I mean, I would be diagnosed as EDNOS at the moment, based on my lack of DSM-IV requirements for an anorexic diagnosis - and there’s this voice inside of me that says (very quietly, mind you)

You can’t even be anorexic properly. You get an F in eating disorders. Now pull up your socks and really put 110% into it.

Is this a good thing? How do you think that this voice could be eliminated, outside of treatment? Is a renaming of EDNOS required?

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8 Responses to “Is EDNOS a Critical Diagnosis?”

  1. Eating Disorder Talk » Blog Archive » Even Anorexics Binge Says:

    [...] month ago, I wrote about being technically, by-the-books, EDNOS. Times change swiftly and I now meet three out of four of the DSMIV criterion for diagnosis of [...]

  2. alex Says:

    I’m a young man of 25 and I believe that
    after all my years of suffering that it
    comes to the conclusion that I may have
    this ‘ed-nos thing’. I’ve been struggling
    on and off since i was 15. Been passed
    around from doctor to doctor in a really
    non-caring approach and treated more like a
    case study rather than a person, and for the
    first time I don’t feel so alone or like
    such a ‘failed anorexic’ after hearing so
    many other stories. I’ve been down the road
    of the bulimic episodes, done every purging
    behavior known to man, had my weight range
    across nearly a hundred pounds between it’s
    highest and lowest (and i’m NOT going to say
    how much i weigh or weighed at my lowest
    becuase 1. I don’t want to ‘trigger’ anybody
    s raw nerves nor do i want to hear that
    bullshit feedback of ‘Oh that’s not too
    critically low’ because that IS EXACTLY what
    ENABLES and sets back the recovery of us
    ED-NOS’ or whatever you wanna call it.
    After all we’re ALL MENTAL ILLNESSES
    regardless of what our diagnosis is and should all be treated equally as severe and
    as people.

  3. Alexandra Says:

    This post was the best thing I’ve read in a long time. I’m ednos, and “You can’t even be anorexic properly. You get an F in eating disorders. Now pull up your socks and really put 110% into it.” is the EPITOME of how I feel, every day. You can’t restrict well enough to be anorexic, you don’t like to purge, so you feel like wow, I even fail at having an eating disorder which pushes you to spiral FURTHER down. Thank you so much for posting this, I thought I was the only one!

  4. Lynda Brazill Says:

    Well, the post is really the sweetest on this deserving topic. I agree with your conclusions and will eagerly look forward to your approaching updates. Saying thanks will not just be enough, for the exceptional clarity in your writing. I will instantly grab your rss feed to stay abreast of any updates.Good work and much success in your business dealings!Thank you.

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  6. Becca Says:

    Wow, I think you hit right on the nose the types of feelings that I have been having. It’s also the reason I don’t get treatment for myself.. EDNOS is so under-estimated that it makes it seem like it’s “no biggie” and makes me embarrased to even ask for the help I could really use. I’ve have an ED from the time I was about 10 I’ve “visited” all the titles, but right now I’m in the EDNOS category. Thanks for writing this though, it helped me to not feel so alone.

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    Wow, I wish I could produce posts nearly as good as you. Your articles are invariably so well written. Do you use outsourcing for it or come up with it your self?

  8. Juanita Samano Says:

    A minute ago I read this specific posting and wished to give you thanks personally. Clear and concise!

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About Eating Disorder Talk

The goal of Eating Disorder Talk is to encourage family and friends of people living with disordered eating - as well as sufferers - to learn more about the conditions, where to get help, the risks associated and another vessel of communication. I come with 20 years of experience living with (and sometimes for) anorexia; my job is not to cure, it’s to allow others to speak. This means wanting to help those that want help and to provide a voice to those who don’t.

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